Tiesdad
Posted 1.26AM
Mon 11 Feb 2008
Hiya, we love diy sos, my wife, Claire thinks billy is great and i think you all are!
I was hoping you might be kind enough to send a signed photo over for my little boy Tie, he is 17 months old and has severe EB, Eb is a genetic condition which is simply awful, you may have heard about the documentary,"the boy whos skin fell off", well that was about the same condition - a brave girl called Melissa Craven recently passed away aged 11, there is simply no telling on how long sufferers have, but every day is in pain. We are going to hopefully have an extension built on our house soon for Ties needs,( but i dont think it will ever happen - the housing association having even responded to our letters of enquiry!) .The charity debra support research to find a cure and the future looks hopeful, so we do what we can to raise funds for them - if you could donate anything that could be auctioned for the charity that would be great!
Best wishes to the whole team, thank you
Peter Davey